i feel like there needs to be a word for accidentally wasting spoons. like if you start a task that shouldn’t be that bad but it turns into a huge energy waster.

like you decide to walk somewhere instead of taking public…

Long spoons? (You allocated a certain amount but you have to stretch them to fit the new circumstances)

I like the idea of stretchy spoons - I do it all the time. (I have to change the way I sit to sit longer than I expected and not use more spoons) You could say the walk used long spoons or even say it took spooons… see what I did there?

spoonie spoon stretching me/cfs

dopeyangel101 asked:

hi lovely, hope you are well :) haven't seen you pop up on my dash in a wee while (probably due to working ridiculous hours but still...) so just thought I would check in with you! Hope to hear from you soon :) *hugs*

I'm Rachel Answer:

Hi there!

This is Rachel’s boyfriend, and I do rather hope i’m actually answering this message properly, I don’t quite grasp the finer points of how to post stuff on Tumblr…

But yes, Rachel asked me to answer her messages on here,and let people know how she’s doing. Unfortunately Rachel is still in hospital, she has had quite a severe flare up of her M.E. symptoms that have pretty much floored her. Aches and pains and migraines and all sorts of unpleasantness… Luckily it seems to be beginning to die down again now, but she’s going to be in hospital for possibly another couple of weeks, while we wait for some housing stuff to get sorted out. 

So… yeah, that’s where things stand right now. Nobody panic, everything is ok! I’ll pass on that you have been asking after her, and I suspect slightly woozy hugs from Rachel will be offered!


that feeling when you listen to a song with good heaphones for the first time and suddenly you notice 7 new instruments, a child singing harmonies in the background, and you’re just sitting there wide eyed and in love with the song all over again

(via dick-jenga)


100% of people who tell you you’re too sensitive are saying it because they don’t want to be held responsible for your reaction when they mistreat you

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13 Reasons Why "You Don't Look Sick/Disabled!" Is Not A Compliment


  1. I am ill and I am disabled, and this is what I look like.
  2. What do you THINK disabled or ill people look like?
  3. It makes it sound like you think disabled people “should” look a bit gross or a bit wierd.
  4. It makes it sound like I have to prove my illness to you.
  5. It creates a hierarchy of what one ableist acquaintence called, “Like, you know. Disabled-disabled and normal people disabled. Like, you’re disabled but you’re also normal. You’re disabled but you’re also not really disabled because you’re also like us.” That is not okay.
  6. It makes it sound like if I did “look disabled” then you’d either think less of me or you’d believe me more.
  7. For the same reasons you wouldn’t say to someone, “You don’t look Jewish!”
  8. For the same reasons you wouldn’t say to someone, “You don’t sound black!”
  9. It often sets the conversation up in a way where you are the judge and you can either validate or invalidate my disability and how much it affects me.
  10. Neither my illnesses nor my disabilities are totally invisible if you took the time to learn about them and decided to pay attention.
  11. It makes you sound untrustworthy. It makes me think you’re going to be the kind of person that will jump to conclusions about my health if I don’t look or act in certain sterotypical ways. Can I laugh and have a good time around you without you implying I’m cured or dismissing my conditions? (Because it really sucks when you do that.)
  12. It feels really dismissive and discouraging.
  13. It is dehumanizing. 15% of the world’s population is disabled. We come in more shapes and sizes than able-bodied people do. Whatever a disabled or ill person looks like, that is what disabled and ill people look like regardless of your preconceptions.

(via inthemidstofallthismadness)